Jennifer Johannesen

Caregiver

Jennifer Johannesen was caregiver to her son Owen, who had multiple severe disabilities all his life. He died in 2010 at the age of 12. Jennifer now writes, lectures and consults on healthcare practice and policy related to patient-centred care, patient engagement and partnership in research, and critical thinking in clinical practice. Jennifer also co-hosts Matters of Engagement, a podcast about patient engagement and partnership. She holds a Master of Science in Bioethics degree from Clarkson University (Schenectady, NY) and is based in Toronto, Canada.